Starting diagnosis process

Hi all!

Earlier this week I was at a cardiologist doing a stress echo because i’ve been having a lot of fainting spells recently. I’ve been doing tests since January. My Iron was super low so my doctor put me on iron supplements.

However, the doctor at the cardiologist place got me to test my skin stretch and flexibility. He told me he thinks I have hED. After much research everything had started to make sense. He said he’s gonna refer me to a specialist but i’m wondering if i wait for the specialist appointment or if i try and get a set in stone diagnosis from my GP.

These are my symptoms: Fainting and Dizziness Migraines Joint Pain (Knees and Fingers) Stretchy skin Joints popping with pain.

Just looking for some advice on the next steps since I have heard that the process of diagnosis is really difficult.

I’ve also had a hard time dealing with i because it’s something I would have to live with for the rest of my life :(