Optic Neuritis attack, no recovery. looking for support.
I've had MS for about 30 years now—most of my life, really. For the most part, it’s been pretty inactive, but the past 12 months have been a real struggle, and I’m feeling lost.
Last year, I was hit with optic neuritis in my right eye. Unfortunately, this time, my vision hasn’t come back, and I’m now legally blind in that eye. I’ve had optic neuritis three other times in the past and recovered fully without steroids, so it’s confusing and frustrating that it’s different this time. Even with both eyes, everything feels foggy, and it seems like my vision is still worsening.
Then over Christmas, I had another attack. I couldn’t walk, and my blood pressure was all over the place—spiking to 234/109 and then crashing to 80/40. I was hospitalized and put on IV steroids for four days. While I can walk again, I feel terrible—physically weak, constantly exhausted, and emotionally drained.
I’m incredibly depressed right now and struggling to cope with the thought of this being my new normal.
Has anyone else experienced something similar with their MS? How do you manage when things feel so overwhelming and your symptoms are this severe? Any advice or just shared experiences would mean the world to me.
Thank you for reading. ❤️