Tired of the daily grind

Tired of the difference

Apologies for a proper moan- but is anyone else tired of the difference between the ‘clinical severity’ of your symptoms and the way they disrupt your life?

I am genuinely very lucky that clinically, my rheumatologist is happy that my symptoms are ‘mild’. But it’s frustrating in a way because they are shocked when I explain how much it’s disrupting my life (having to drop my work hours, no social life, dealing with constant, daily symptoms).

This is in no way saying I wish I was more ill… but I do wish that everyone else saw that it doesn’t mean that my life hasn’t been turned upside down.

Sorry. End of rant 😅.