Lupus in the Summer (in Greece)

Yes it is as bad as it sounds. Yes I’m even in a Greek island where it’s in the 100s each day.

I got my first flare up last September after being out in the sun, at noon, for like 30 minutes.

I am TERRIFIED because this summer we are supposed to have friends visiting us from abroad and want to go sightseeing and on adventures. In the sun. In the 100s.

I get that “you can wear long sleeves” but girl… I’ll get a heat stroke! Maybe an umbrella is the solution?

How do I even go swimming? This is all incredibly new and scary to me.

I got my first flare up in September, and I was bed ridden for 2 months so I haven’t been in sun much. However if I dare to step out in the sun, even from a car to a store, a couple of minutes of walking, with sunscreen and long clothes in winter, I get terrible face rashes, that swell and a headache that lasts for days.

Please lmk if you have any clues on how u could help myself! Anything is appreciated!