Does This Happen To Anyone Else
To me this may be the most frustrating thing about lupus to deal with. My heart doesn't work right. Like one minute I'll be fine at 75bpm then boom I'm at 165 and haven't moved. Sometimes I'll stay at 130-160bpm+ for hours or even days. It's exhausting. I'm an active guy but I haven't been lately because I'll walk 5 feet and feel like I just ran a marathon, and god forbid I do an actual work out without passing out 15 seconds in. I feel stuck. Nothing brings it on and it lasts as long as it lasts. I can handle it for the most part but at night it keeps me up. My body feels like I'm working out and stays awake ready to go all night.
Between the exhaustion, the grey skin and turning blue/ purple from time to time people tell me I look like death and lord knows I feel like it.
Please tell me I'm not alone in this. Is this a normal thing for people with lupus? Or am I in bad shape?