Rainbow baby with severe micrognathia

Our first pregnancy we had to TFMR due to full LUTO at 18 weeks (our son’s entire renal tract and kidneys ruptured). We are currently at 19 weeks gestation with our rainbow baby after 1.5 years of trying, multiple procedures, and rounds of IUI. We recently found out our baby has severe micrognathia (more than 50% under developed mandible) identified at a 16 week ultrasound. We did an amnio at 17 weeks and the amnio ultrasound results were even worse - NO additional mandible development at all in a week, possible cleft, and possible hypertelorism now. Does anyone have experience with this? Genetics and micro array came back normal so far (still waiting on standard chromo results) with no possible sources identified yet. MFM called her condition congenital and says it is potentially impacting her entire mouth (possible cleft) and possibly orbital bones. We go again for another ultrasound soon but we are unsure what to do since her condition is SO severe she wouldn’t be able to eat, talk, or possibly breathe and may affect ear canal growth and vision. The tongue in such severe cases, can also potentially grow backwards and need surgery or can block the air ways. Organ development seems okay so far but MFM says too soon to tell. They are very focused on seeing her heart one more time. I’ve gone down the google rabbit hole and have no idea what to do now. We don’t want her to suffer and it sounds like she’d need many jaw breaking surgeries, amongst other things. Curious if anyone has experienced such micrognathia severity before and did you continue or TFMR?